15 November 2006 - 01:05 PM
How are you all doing today?
I had to take a step back last night when I saw and advertisement for COPD.... I couldnt believe it!!! I thought FINALLY, they are advertising COPD websites on TV.
The site is: http://www.copdguide9.com
there was also a phone number 1-800-310-4864
The site looks very interesting, alot of information and you can order helpful guides about COPD on the site.
I hope you all will check it out and in some way, be an inspiration to all.
[QUOTE] "WHEN YOU CANT BREATHE, NOTHING ELSE MATTERS".
[QUOTE] For the "BREATH OF LIFE - SAVE YOUR LUNGS, SO THE MUSIC CAN ALWAYS BE PLAYED"
15 November 2006 - 01:56 PM
COPD GUIDE.Com before but it has been awhile. They have updated
the site. It used to just be a site to request material and wasn't half as
nice as it is now. Everyone should take a look at this. It is very good.
01 January 2007 - 07:04 PM
another great link!
My name is Irene and my husband has copd, chf, 30% of his heart, and numbers of other thing, and he is suppose to use 02 24hrs a day but dont. and we had notice a chance in him. he is more hateful, and cant stand to be around our grandson like he use to, he cant remember like he did. he is running me crazy.i dont know what to do anymore.can someone give me some advise.please.
01 January 2007 - 08:09 PM
Hello Irene, and welcome! I am so happy that you found us! I am also so very sorry that you are going through this with your husband and your family. I hope that you can find some comfort and information here.
If your husband is supposed to be on oxygen, and he doesn't use it, that's probably what the problem is with the personality change and irritability. Lack of oxygen to the brain and vital organs will do that. He's probably not feeling well, either. That too, can be aggravated by a lack of adequate oxygen.
If I hear you correctly, non compliance with his therapy is tough. Oxygen is a therapy; it's considered one of the most important ones for treating lung diseases and some heart diseases. His heart wouldn't be so overworked if he stayed on the oxygen. Does he have a history of noncompliance, Irene? Does he take his meds appropriately and any other treatments, like nebulizers? If this is new behavior, it might be the lack of oxygen or maybe depression.
I know I go through depressions about being considered ill (I have an FEV1 of 34%) but I take anti-depressants and I know the oxygen helps me alot. When I started on oxygen, I too, was not happy about it, but now after about a year, I see the advantages. I can do more and I physically feel better by being able to move more.
Everyone here at BBLW is very caring and this site alone has a wealth of information on it. Your biggest ally will probably be information. I just want to say now that I can tell you are a compassionate care giver and I would feel so lucky to have someone like you who would seek out help to cope with this horrible disease. Thank-you so much for sharing! Please continue to come back and I'm sure more people here will be around to help you out!
01 January 2007 - 09:38 PM
Welcome, Irene, and please feel free to post here. I'm so glad you've joined us.
02 January 2007 - 12:13 PM
I'm glad that you have found this site and thank you for
sharing. I can fully understand your frustration and fear.
I'm one of those people that didn't like to comply with
my Doctors orders. I don't know if it was because I
thought I would get better but I soon found out that
denial was no way to live.
I am 48 years old and have been using 02 24/7 for
3 years this month. I hated to ware 02 and felt it wasn't
necessary. I too was grumpy and had no patients with
my Dear Wife, children and especially my Grand daughter.
I was always tired and could hardly force myself to get out
of bed. I have a FEV 1 of 20% and had been told by my
Doctor that there was nothing he could do.
I woke up one day and decided that I didn't want to live like this.
I got a referal to a Pulmonologist who corrected my medications,
insisted that I use the o2 and set me up in a Pulmonary Rehabilitation
Program. It didn't take long all of this to start showing. I have more
energy, I feel better, I can breathe better and I'm a much nicer person
to be around.
I hope that your husband can find some way to improve his circumstances.
Having COPD may slow us down but it in no way means it is the end.
Please keep coming back. We have a world of information on this site.
If you have questions, we will do our best to get you an answer.