Posted 27 February 2004 - 05:13 PM
Posted 28 February 2004 - 12:53 AM
I first sought help in Oct. of 1985 'cause something was wrong that was affecting my ability to perform on the job duties. Wasn't until Feb. of 1992 that I got sick, so sick I could barely walk without severe shortness of breath. Had a friend take me to the local hospital in northern CA. By that time, it was pretty obvious. Severe emphysema and down to 30% lung function. After a 6 day stay, knew it was time to finally quit smoking even though I had no clue what the big E was. Wasn't until I moved to Oregon in late 1992 where I began a new life. Started to put together my "medical team". Ran into a Resperitory Therapist who started our local Pulm. Rehab and ran our local Better Breathers Club that really turned things around for me. She was my mentor and taught me soooo much. There is life after a diagnosis of COPD. After looking back with 20/20 hindsight, breathing problems had haunted me in the early 1980's. I peg it back to at least late 1979. Takes a long time before it can severely affect our lives. And by then, can't get back what we've lost. But we can learn how to make the best usage of what we have left.
Yours In Better Breathing.
Patrick In So. OR
Posted 28 February 2004 - 08:14 AM
I am so glad that you have a "team" to help you. That's great. A good pulmonary specialist and respiratory therapist and the programs that you mentioned make all the difference. In fact, the official T-shirt for our program, chosen by our participants says, "Pulmonary Rehab -- A World of Difference!"
How about anybody else? We would love to hear from you and how you learned to cope with COPD or other pulmonary disease. Or even if you are not sure if you might have something going on with your breathing, this is one place to start asking......
Posted 17 December 2004 - 02:33 PM
Posted 27 December 2004 - 07:57 PM
I was lucky enough to have a kind spouse, but some people have a lot of bitterness in their relationship and that just doesn';t do anybody any good. Just harm.
Posted 13 June 2005 - 05:53 PM
Posted 15 June 2005 - 03:52 PM
Posted 31 July 2005 - 07:27 PM
We do spend our whole lives it seems taking care of everybody else, and once you have lung disease you really do have to start taking better care of yourself. It can come down to being a matter of life and death. We have to keep on encouraging each other more because those little messages from each other who have been there are what keep us going. Sometimes it is all that keeps us going.
Let's make it more of a habit to lift each other up.
Take care, you all, and be in touch.
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